Lipedema in the News

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Lipedema Educational Seminar
WHERE: Meeting Room at Staybridge Suites O’Fallon
1155 Technology Drive, O’Fallon, MO 63368
WHEN: Thursday, June 14, 9 am to Noon.
WHAT: A casual, educational seminar that will discuss what Lipedema is, how it is diagnosed, and the stages of Lipedema. Conservative and surgical treatments will also be discussed. Dr Vincenza Cifarelli, from Member of Washington University Research Team will be on hand to discuss current NIH funded study looking at Lipedema and Fat Metabolism. Attendees will have the opportunity to ask questions, meet Dr. Thomas Wright MD RVT FACPh, and meet representatives of Tactile Medical. The seminar is free. A Complimentary Healthy light lunch will be provided.
ACCOMODATIONS: A block of rooms has been reserved at the Staybridge Suites at a discounted rate for this event. You must mention the Laser Lipo and Vein Center block when reserving your hotel room in order to receive the discounted rate. Call 636-300-0999 or visit www.staybridge.com
For questions about the seminar please email Brandy at Brandy@Wrightvein.org or call 636 614 1665.

Lipedema also known as “Painful Fat Syndrome” is a disease that is underappreciated and often misdiagnosed. The disease affects ten percent of women. It causes fat to be swollen and disproportionate primarily in the lower limbs and can spread to the abdomen and arms. Many women who suffer from Lipedema are not aware that they are actually being affected by this disease, and rather think that they are just overweight or obese. Wright will discuss causes and stages of Lipedema as well as how Lipedema is diagnosed. He will also discuss conservative treatment options such as diet and supplements, physical therapy, and compression Surgical options such as lymph sparing suction lipectomy will also be discussed. Wright is one of the few surgeons in the country who diagnoses patients with Lipedmea and performs the lymph sparing lipectomy surgery. The event is expected to last about three hours, and is free of charge. Attendees will then have the opportunity to be evaluated for Lipedema on Thursday afternoon or on Friday. Insurance will be billed for the evaluation, or patients may opt to pay out of pocket for the evaluation. Those who chose to be evaluated will also have an opportunity to discuss treatment options both conservative, and surgical with Wright. Representatives from Tactile Medical, makers of the Flexitouch compression pump, and from Sigvaris compression garments will also be attending the event to speak with attendees about conservative treatment options. A light lunch will be served following the event. A block of rooms is reserved at a discounted rate for out of town attendees at the Staybridge Suites. For more information or to RSVP for the event, please call Laser Lipo and Vein Center at 636-397-4012. To reserve a room at Staybridge Suites for this event please call 636-300-0999.

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FDRS Press Release

Dr. Wright will be speaking at the Fat Disorders Research Society Convention on April 28th, 2018 at the Double Tree Dallas, where he will shed light on various elements of Lipedema Disease. Difficulties in diagnosing the disorder, effects and causes of it, and the most cutting-edge treatments available today will all be discussed. As a board-certified physician and specialist in Lymphatic and Venous Medicine and the industry leader in treating Lipedema Disease, Dr. Wright is sure to provide a valuable perspective at this great event.

Lipedema is a type of adipose tissue disorder, which is one that affects a person’s fat cells and the way in which they interact with the rest of the body. This disorder and others like it are often confused with obesity, but in reality, it comes with much different causes, symptoms, and effects. To put it simply, it results in an unnatural accumulation of fat throughout the body, particularly in the buttocks and the legs. What starts as a condition that negatively affects a person’s confidence and psyche can quickly lead to chronic pain and more serious medical conditions. Luckily, there are ways to address these disorders which will help maintain a healthy lifestyle, body, and outlook.

The Fat Disorders Research Society is an organization that strives to improve the lives and overall health of all those affected by lipedema and many disorders like it. This convention taking place from April 27th to the 29th is a great example of this society’s goals as medical experts in fat disorders to come together to teach and learn from one another.

You will find commonality among the disorders addressed at this conference in that they do not receive the same attention from the medical community as many other disorders. This is because it is the mission of the FDRS to address people’s problems that are not being addressed elsewhere. Being on the cutting edge of adipose disorders and their treatment is an endeavor which this conference and the work of people like Dr. Wright support.

Dr. Wright knows as much about this disease as anyone else practicing medicine today and has made it his mission to help as many people who are suffering from it as possible. A big part of how he does this is by providing the best treatment for those that seek it. State of the art liposuction techniques and technology that spare the lymph nodes are his specialty. But another big aspect of his mission is sharing knowledge and spreading awareness of lipedema and disorders like it. The role he will be taking as a speaker at the upcoming FDRS conference is one step on this mission.

By visiting http://www.laserlipoandveins.com or calling (636) 614-1665 you can learn about the amazing things Dr. Wright is doing. Visit http://www.fatdisorders.org to learn more about the upcoming conference along with some of the great work happening within the Fat Disorders Research Society.

 


Project: Genetic Risk Factors and Corresponding Mechanisms Underlying Lipedema

Lipedema is a painful and debilitating condition affecting approximately 10% of adult women. It is characterized by excessive and painful fat in gynoid areas (buttocks, hips, legs) and a relatively small waist circumference. By capitalizing on multiple complementary studies, we seek to robustly identify genetic risk factors for lipedema and follow-up on specific loci by measuring gene expression levels in affected and unaffected fat tissue.

By identifying the genes that cause lipedema, we can identify physiological mechanisms that may be therapeutically acted upon, and potentially make predictions of an individual’s risk for lipedema. A better understanding of the pathways and mechanisms underlying lipedema can thus lead to improved prevention and treatment.

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Dr Herbst and Dr Wright explain the Treat Study to help understand lipedema

Dr. Thomas Wright and Dr. Karen Herbst go into detail on lipedema and the Treat Study. With their expertise, you will get the inside scoop of what the top doctors of today are interested in the world of lipedema and the treatments for lipedema.

 


Support Lipedema Research in the USA

Dr Wright and Dr Buck are enrolling patients in a study on Lipedema. The study aims to determine the effect of weight loss on body composition and fat distribution, metabolic function (insulin sensitivity) and adipose tissue biology in women with lipedema before and after diet intervention. These results will be compared to women with obesity without lipedema. The study will last ~8-9 months and requires 5 outpatients visits and 1 inpatient visit before weight loss, and 5 outpatients visits and 1 inpatient visit after weight loss. We aim to achieve 8%-10% weight loss in ~4 months. All meals will be provided by us for the duration of the weight loss period. Study participants will be supervised weekly by our dietitian during the weight loss period.

Compensation for travel and free meal and free metabolic testing are provided for study participants.

If you are interested please contact us on the contact form or Contact Melisa Moore:

Office Phone Number: 314-362-8604
Email: melisa.r.moore@wustl.edu

Help us Learn more about the disease called Lipedema

Inclusion Criteria:

i) Diagnosis of Lipedema by Dr. Wright or Dr. Donald Buck

ii) Age ≥18 and ≤55 years;

iii) BMI ≥30.0 and <45.0 kg/m2>

Exclusion criteria:

i) Previous bariatric surgery or liposuction surgery

ii) Diagnosis of Type 2 Diabetes

iii) HbA1C <5.7%. iv) Structured exercise >2 days/week for ≥35 minutes of intense exercise (e.g., jogging, activity that causes heavy breathing and sweating) or ≥150 min per week of structured exercise (e.g., brisk walking)

v) Unstable weight (>4% change during the last 2 months before entering the study)

vi) Significant organ system dysfunction (e.g., diabetes, severe pulmonary, kidney or cardiovascular disease)

vii) Cancer or cancer that has been in remission for <5 years viii) Major psychiatric illness ix) Conditions that render subject unable to complete all testing procedures (e.g., severe ambulatory impairments, limb amputations, or metal implants that interfere with imaging procedures; coagulation disorders) x) Use of medications that are known to affect the study outcome measures (e.g., steroids, non-statin lipid-lowering medications) or increase the risk of study procedures (e.g., anticoagulants) and that cannot be temporarily discontinued for this study xi) Smoke cigarettes >10 cigarettes x/week

xii) Women who consume >14 units of alcohol per week

xiii) Pregnant or lactating women

xiv) Vegans, vegetarians, those with lactose intolerance and/or severe aversions/sensitivities to eggs, fish, nuts, wheat and soy, and/or any individuals with food allergies that induce an anaphylactic response

xv) Persons who are not able to grant voluntary informed consent

xvi) Persons who are unable or unwilling to follow the study protocol or who, for any reason, the research team considers not an appropriate candidate for this study, including non-compliance with screening appointments or study visits.


 

Instagram Star with 70 Inch Butt Diagnosed with Lipedema

A little-recognized disorder, lipedema, may be responsible, says a local expert. Lipedema makes you look like you’ve been eating too much when in fact, your fat cells are retaining fluids and growing exponentially larger than normal because of this condition.

Instagram star Randalin has is someone with lipedema who is not shy about her large hips and thighs from lipedema. In fact Randalin seems to have embraced her shape and see her curves as assets.

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Maybe being fat isn’t your fault: A look at lipedema

On the tv show The Doctors, lipedema has once again come up. This time it’s with someone who’s big behind has made her a star. This isn’t the first time I’ve run into Raylynn on the internet. I came across her picture elsewhere, where people were less kind about her body type. I went to her Instagram account and could instantly tell what she had was lipedema. It’s just so obvious with the tiny waist and flat stomach. You can see her arms getting slightly bigger now too. Anyhow, on this The Doctors segment, they have plastic surgeon Dr. Andrew Ordon do a brief exam on Raylynn and he diagnosed her with this horrible condition. I’m actually excited about this particular diagnosis because she’s an internet celebrity and this is going to make some rounds. Her fans are going to talk about this episode thus talk about lipedema. I feel we’re one step closer to the right direction.

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Column: The ‘Disease They Call Fat’ Misunderstood, Misdiagnosed

Koehrer is indeed struggling with extra weight. The additional pounds the 74-year-old Montgomery woman carries in her legs, thighs and midsection, however, are not the result of poor lifestyle choices but rather an incurable and chronically progressive disease that causes painful accumulations of fat which will not respond to diet or exercise.

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Mikel Ruffinelli Woman With The Largest Hip In The World

Mikel Ruffinelli is a woman born 43 years ago, at first she was a normal woman like most women, has a height of 5 feet 4 inches and weighs 180 pounds. But it changed drastically when she gave birth to her first child, her weight increased 56 pounds, and strangely again the weight gain is only happening on her hips alone, then more and more often have a child for some reason hipik Mikel increasingly enlarged. And after giving birth to her fourth child the width of this woman’s waist reaches 8 feet and makes her name listed in Guinness World Records as the widest hip woman in the world. In the medical world the disorder is called lipedema.

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Living With Lipedema

After receiving the diagnosis of Lipedema, all heads turn to the Internet for the glory answers of what, how, and the why. And of course, who else? You view minimal reporting from doctors and remind yourself, “That’s probably why my family doctor thought I had painful cellulite.” Yes, you are shocked, and agree to never return to a doctor who believes in such falseness. By the way, we did our research and indeed, there is no such thing as painful cellulite.

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Kim Kardashian Does not have Lipedema

As a physician who diagnoses and treats lipedema, I was very concerned and disappointed in the misunderstandings and incorrect information put forward in recent National Enquirer magazine story, “Kim’s bubble butt is going to Burst”. Not only does this article’s highly exaggerated title reflect a clickbait falsehood rooted in myth and misinformation, the many claims made by the article are also completely false and highly irresponsible.

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Kim’s Bubble Butt Is Going To Burst

Bottom-Heavy Kim Kardashian is battling an incurable butt disease – that could lead to her lower limbs exploding in a bloated mass of fat!

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Lipedema Causing Limbs to Explode!

I saw the articles about Kim Kardashian having lipedema, what I didn’t see was that the National Enquirer claimed that her “lower limbs could explode in a bloated mass of fat.”

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Meet Dr. Wright

Dr. Wright

Meet Dr. Thomas Wright, medical director of Laser Lipo and Vein Center. Dr. Wright is a board certified Phlebologist and cosmetic surgery specialist, with over 15 years of practicing experience. A graduate of the University of Missouri Columbia medical program, Dr. Wright was one of the first two hundred surgeons to become a diplomate in Phlebology.

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