Lipedema is a complex condition that affects connective tissues, leading to abnormal fat accumulation, particularly in the legs and arms. However, there is another important factor that often accompanies lipedema: hypermobility. Studies suggest that between 60% and 70% of women with lipedema also have joint hypermobility, a condition that can impact daily life and complicate the management of lipedema.
What is Hypermobility?
Joint hypermobility is a condition where joints move beyond the typical range of motion. It is commonly measured using the Beighton Score, a clinical tool that helps determine the degree of joint flexibility. A score of 5 or higher classifies someone as having joint hypermobility. This condition can lead to joint pain, instability, and a higher risk of injury due to the excessive movement allowed by loose connective tissues.
Hypermobility and Ehlers-Danlos Syndrome (EDS)
Hypermobility is also one of the key criteria for diagnosing Ehlers-Danlos Syndrome (EDS), a group of genetic disorders that affect connective tissues, including the skin, bones, blood vessels, and organs. Of the 13 types of EDS, the most common is hypermobile EDS (hEDS), which shares many characteristics with joint hypermobility found in lipedema patients.
However, not every individual with lipedema and hypermobility has hEDS. While there is an increased association between hypermobile EDS and lipedema, the two conditions are not always directly linked. It is possible that lipedema itself, as a connective tissue disorder, may contribute to or cause hypermobility in some individuals. This overlap in symptoms makes diagnosing and managing these conditions more complex.
If you suspect you may have hypermobile EDS, we recommend reviewing the official diagnostic criteria checklist provided by the Ehlers-Danlos Society. You can access the checklist here to better understand whether your symptoms may align with hEDS.
Signs and Symptoms of Hypermobility in Lipedema
Women with both lipedema and hypermobility may experience a variety of signs and symptoms related to the looseness of their connective tissues. Some of these include:
- Joint Pain and Instability: Loose connective tissues can lead to excessive movement in the joints, causing discomfort and increasing the risk of sprains or dislocations.
- Fatigue: The extra effort required to stabilize loose joints can cause chronic fatigue, particularly in the muscles and joints.
- Skin Elasticity and Fragility: In some cases, the skin may stretch or bruise more easily due to its loosened structure.
- Piezogenic Papules: Small, soft bumps that appear on the heels or other weight-bearing areas. These papules are a common sign of connective tissue disorders like hypermobility.
Managing Hypermobility and Lipedema
Understanding the connection between lipedema and hypermobility is crucial for effective management. Women with lipedema should consider being assessed for hypermobility using the Beighton Score or consulting a specialist to explore possible links to Ehlers-Danlos Syndrome. There is an increased risk of joint injury with hypermobility. It’s recommended that extra care is taken with high impact exercise and/or sports because of the risk of joint dislocation. Managing these conditions often involves a combination of treatments, including:
- Physical Therapy: Strengthening exercises can help stabilize joints and reduce pain caused by hypermobility.
- Compression Garments: These can support the connective tissues and reduce swelling associated with lipedema while also providing joint stability.
- Dietary Supplements: Supplements like Vitamin C, Vitamin D3, and diosmin may play a role in supporting overall connective tissue health and managing inflammation.
- Medical Consultation: Regular check-ins with healthcare providers experienced in connective tissue disorders can ensure proper management of both lipedema and hypermobility.
At Lipedema Surgical Solutions, we take a comprehensive approach to lipedema care, which includes assessing for hypermobility and related conditions. If you believe you may have joint hypermobility or EDS, contact our team today to learn how we can create a personalized care plan that addresses all aspects of your condition.
